Sanfilippo Syndrome is a rare genetic condition that causes fatal brain damage. It’s referred to as a childhood disease as most patients never reach adulthood. Every year worldwide an estimated 2,000 babies are born with this neurodegenerative disease.
We are also lucky enough to have a new Charity Race Ambassador who is personally connected with the Sanfilippo Children’s Foundation joining our Race Ambassador team, Michelle Morrice. Michelle will be racing for “Hope for Alec”. Michelle is Alec’s mum. Alec has Sanfilippo Syndrome and Michelle is doing everything in her power to raise funds and awareness for the Sanfilippo Children’s Foundation and we are just so happy to be able to support Michelle.
“Our hope is for the advancement of clinical trials to help develop a treatment and hopefully one day a cure for this condition so that children with Sanfilippo can live a life that every child deserves. We hope the wider community can help spread the word and help us to make exactly this happen.”
Michelle Morrice, Alec Morrice’s Mother.
The Brisbane Trail Ultra is excited to be able to do something positive to help find a cure for Sanfilippo Syndrome. The Brisbane Trail Ultra and the SESuper Series is part of a national endurance event where you can run, swim, trail run, compete in cross fit to help raise fund to find a cure to Sanfilippo Syndrome.
You will be able to run as an individual or in one of our relay teams to raise funds for research and hopefully a cure.
The mission of the Sanfilippo Children’s Foundation is to fund medical research so a cure can be found in time for children battling Sanfilippo today and those born with it tomorrow.
Born seemingly healthy, over time the brain of children with Sanfilippo gets progressively damaged. Children experience hyperactivity, sleeplessness, dementia, loss of speech and cognitive skills, intellectual disability, cardiac issues, seizures, loss of mobility and finally death.
There is currently no effective treatment or cure, and life expectancy is just 12-20 years.
So the Sanfilippo Children’s Foundation created the SFSuper Series – a group of events that will challenge and inspire you no matter how fit or how much experience you start with.
Funds raised by the SFSuper Series go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
If you’re part of the Sanfilippo community, we support, encourage and help you to participate in events you may never have considered.
Brisbane Trail Ultra is giving Sanfilippo Children’s Foundation members a 10% discount code. Running and fundraising the SESuper Series means a discounted entry fee, free training plan, training sessions with world class coaches, a super supportive community of like minded runners, running merchandise, plus loads of other goodies.
In 2019, the SFSuper Series enters it’s fifth year and we’re super excited to announce that it will be one of our Brisbane Trail Ultra charity partners. We’re anticipating a large number of SFSuper Series participants in the Brisbane Trail Ultra as it promises to provide a challenging course, incredible scenery and an epic finish festival and support crew experience!
Brisbane and South East Queensland is ready for an epic ultra trail event with stunning scenery, challenging climbs, sweeping views of the Brisbane Hinterland, Moreton Island, Moreton Bay, out to the Great Dividing Range then return to an atmospheric ending to your emotional trail.
You will journey though steep gorges, eucalyptus forest, virgin rainforest, meandering single trails catching glimpses of the Brisbane Skyline in the distance, then return to the CBD of Brisbane for a destination finish that will rival that of the europeans.
You can choose between 3 distances and then decide if you will go solo, or race it in sections with a team mate or 3. 30k solo, 30k relay team of 2. 60k Solo, 60k Relay team, 110k Solo, 110k Relay Team of 4. We want you to use this event as a stepping stone to building up your trail running skills. Try one of our relay legs, build your confidence and ability, then go it solo.
The inspiration for the Brisbane Trail Ultra comes from living in the Brisbane’s vibrant city and acknowledging that it’s strength is it proximity to the amazing trail of Brisbane Forest, D’Aguliar National Park and SEQ Water Land around Gold Creek, Enoggera Reservoirs.
The course is important to us. We’ve designed the course to have as much single trail as possible, the prettiest scenery we could find, the steepest climb and descents to get you prepared for racing in Australia and beyond.
Brisbane is only 8ks from its forest. This is unheard of in most capital cities around the world and something that should be celebrated.
Why finish in a City? Brisbane is famous for it’s liveability. South Bank has its bridges that are lit up at night, pools, gardens, coves and of course it’s stunning back drop, Brisbane’s Skyline. At Brisbane Trail Ultra we want to put on a show for you. Our event will run through the Brisbane French Festival at South Bank so you can have a little piece of Chamonix.
You will run past the Queensland Australia Gallery Modern Art Gallery (GOMA), Queensland Performing Arts Centre (QPAC), Queensland Museum and Science Centre, Queensland Library. Your support crew will have so much to do while you are out racing and enjoying yourself. Brisbane Trail Ultra will be the event that everyone in your family will be happy you are taking part in.
While you are out adventuring your partner can be enjoying the delights of Brisbane’s La Trobe Terrace, West End, South Bank restaurants and cafes.